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England and Wales High Court (Family Division) Decisions |
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You are here: BAILII >> Databases >> England and Wales High Court (Family Division) Decisions >> A NHS Trust v DE [2013] EWHC 2562 (Fam) (16 August 2013) URL: http://www.bailii.org/ew/cases/EWHC/Fam/2013/2562.html Cite as: [2013] EWHC 2562 (Fam) |
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This judgment is being handed down on 16/8/13 It consists of 27 pages and has been signed and dated by the judge. The judge hereby gives leave for it to be reported.
The judgment is being distributed on the strict understanding that in any report no person other than the advocates or the solicitors instructing them (and other persons identified by name in the judgment itself) may be identified by name or location and that in particular the anonymity of the children and the adult members of their family must be strictly preserved.
This Judgment is subject to a Reporting Restrictions Order and this judgment is anonymised in compliance with that order.
Strand, London, WC2A 2LL |
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B e f o r e :
____________________
A NHS TRUST |
Applicant |
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- and - |
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DE (Appearing by his Litigation Friend the Official Solicitor) |
1st Respondent |
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- and - |
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FG and JK |
2ndRespondents |
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- and - |
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C Local Authority |
3rd Respondent |
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- and - |
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B Partnership Trust |
4th Respondent |
____________________
Mr. Angus Moon QC (instructed by the Official Solicitor) appeared for the 1st Respondent
FG and JK (Not represented and appeared in person as the 2nd Respondents )
Mr. John McKendrick (instructed by Weightmans) appeared for the 3rd Respondent
Miss Victoria Butler-Cole (instructed by Bevan Britton) appeared for the 4th Respondent
Hearing dates: 29, 30, 31 July 2013 1, 2 August 2013
____________________
Crown Copyright ©
Mrs. Justice Eleanor King DBE:
Introduction
a) DE does not have capacity to make a decision on whether or not to undergo a vasectomy and to consent to this procedure;
b) That it is lawful and in DE's best interests that he should undergo a vasectomy;
c) It is lawful for the NHS Trust to take any steps which are medically advised by the treating clinicians at the trust responsible for DE's care to undertake this procedure which may include the use of a general anaesthetic and all such steps as may be necessary to arrange and undertake the procedure including general anaesthesia.
Background
…given DE's historical and consistent expressed desire to have a relationship with PQ and the significant steps that he has achieved recently to attain a degree of independence, I would be keen to ensure that any protection plan was balanced and proportionate……………from a clinical perspective, my concern would be to ensure that the level of any restriction or supervision that is placed on DE (particularly with his contact with PQ) does not detract from the independence that he has attained or disrupt his social relationship with PQ in its entirety as my impression is that this relationship is very important to him.
a) Engaging without supervision/staff support, with the local community
b) Walking through town from one venue to another with a friend
c) Going to shops, making purchases, interacting with traders and passers by
d) Using the local gym and facilities on the same terms as any other participant
and that is before one factors in the loss to DE of any form of privacy or time on his own with his long term girlfriend.
The Trial
i) LM, DE's General Practitioner. With respect to LM his evidence given his very limited involvement with DE, took the matter no further.
ii) XX gave evidence that 0.5% was indeed a reasonable percentage reflecting the risk of chronic or severe scrotal pain. He himself had never had a patient come back with chronic scrotal pain. In answer to questions from the court XX said that he regarded a vasectomy as "a routine safe form of long-term contraception for men" and agreed that that view should be the starting point for the court's consideration of the issues. XX said that he would use a procedure called the Li-no-scalpel technique which was the least invasive procedure and he himself would carry out the vasectomy.
iii) YY, a consultant anaesthetist, also gave evidence; his view was that the operation could be carried out under local anaesthetic and the risks were "one in a million". Were it necessary to convert to a general anaesthetic the risk was one in 400,000, he regarded the procedure as "very safe"
iv) CH a Clinical psychologist who has done work with DE in the past and knows him well also gave evidence. It became clear during the course of her evidence that she considered that DE might be able to attain capacity to enter into sexual relations in time if the right sort of direct work was done with him. This suggestion clearly has a significant impact on the ultimate issue as to whether or not it is in DE's best interests to have a vasectomy. By agreement therefore the hearing was adjourned so that CH and ZZ could carry out further work with DE to assist him to acquire capacity to enter into sexual relations.
"I feel DE's world has been tipped upside down. We always encouraged him to do the best he could, go out and be as independent as he could, taking into account his learning disabilities and speech, like going on the bus to the next town. It took him 15 years to do that. Things don't come easily. Now I feel we've gone back a few steps. Even when the restrictions have been lifted, like walking from the base, he was very reluctant to do it. His confidence has been knocked back… I would like to get him back to where he was with his independence".
DE's personality
i) PQ wishes DE to go to their social club, it clashes with swimming - he goes swimming;
ii) DE is very conscious that his parents have reservations about PQ separate from their anxiety about a further pregnancy. DE has resumed his relationship with PQ although he has tolerated, without objection, the restrictions imposed upon them.
DE's wishes and feelings
i) Where he wishes to live
ii) Does he wish to have any more children
iii) Does he wish to have a vasectomy
DE's expressed desire to have no more children.
i) The evidence of all those who know DE and have the skills to ascertain his wishes are clear that DE knows what it is to be a father and does not wish to have another child.
ii) DE has had the experience of having a child and is therefore able to bring to bear his own life experience, an important feature given his inability to think in abstract terms.
iii) DE is very well aware of the upset and distress which was the result of XY's birth; he would not wish to repeat it.
iv) I am satisfied that DE's own limitations render him childlike much of the time, and accept the evidence that it is highly unlikely that he would ever wish again to be in a situation where his own routine and life at home with his parents is so disrupted.
DE's wishes and feelings in relation to the proposed vasectomy
i) DE is clear and consistent that he does not wish to have another child
ii) DE does not have the capacity to consent to contraception; it is therefore for the court to consider whether a vasectomy is or in not in his best interests having taking into account his wishes in respect of not having a baby.
Alternative contraception
i) The evidence is that PQ is unreliable in taking the contraceptive pill and has a phobia of needles so a Depo injection has been discounted.
ii) In the event that the relationship breaks down, it is likely that he will form another relationship. In the group of learning disabled people who form DE's social circle, it is the norm for there to be relationships within the group; DE is popular and friendly and after 11 years with PQ accustomed to having a girlfriend. Even if PQ was wholly reliable in relation to her own contraceptive care, a future girlfriend may not be so assiduous.
"It is clearly in DE's best interest to have a vasectomy as the benefits of the procedure outweigh the principal cost which is a small risk of significant side effect namely long term testicular pain.
It is my opinion that the potential benefits of vasectomy clearly outweigh the costs. It is the most effective method of preventing him fathering another child, an outcome which he has clearly stated that he wishes to avoid."
Consequences of a further pregnancy
i) Not only would DE be upset, as he does not want another child, but so too would be his parents, which has a direct and significant impact on DE's well being and happiness. The court is not directly concerned with the interests of FG and JK, but it is concerned at how their levels of tension and distress impact on DE's welfare and comfort and it is clear that that the impact is considerable.
ii) The court was told that in the event that PQ has another child, that baby would in all likelihood be taken into care and placed for adoption. When these proceedings were issued PQ broke off her relationship with DE as she wrongly believed them to be in someway connected with XY. There is no doubt that if a baby was taken from PQ it would impact very significantly on DE and might well lead to the termination of this enduring relationship, a relationship which all the professionals involved regard as of great importance to him and which must be protected and nurtured in his best interests. DE was very upset when there was a three or four month hiatus in their relationship, I am satisfied that if the relationship foundered due to another pregnancy it would be a real and enduring loss to DE.
Impact on DE's life in the event that there is no vasectomy
The Law
i) To litigate
ii) To decide whether or not to consent to contraception
iii) To decide/ consent to undergo a vasectomy procedure
DE does however have capacity to consent to sexual relations.
Where a person lacks capacity the Mental Capacity Act 2005 provides at Section 1(5) that:
"(5) An act done, or decision made, under this Act for or on behalf of a person who lacks capacity must be done, or made, in his best interests."
4. Best Interests
(1)In determining for the purposes of this Act what is in a person's best interests, the person making the determination must not make it merely on the basis of—
(a) the person's age or appearance, or
(b)a condition of his, or an aspect of his behaviour, which might lead others to make unjustified assumptions about what might be in his best interests.
(2)The person making the determination must consider all the relevant circumstances and, in particular, take the following steps.
(3)He must consider—
(a) whether it is likely that the person will at some time have capacity in relation to the matter in question, and
(b)if it appears likely that he will, when that is likely to be.
(4)He must, so far as reasonably practicable, permit and encourage the person to participate, or to improve his ability to participate, as fully as possible in any act done for him and any decision affecting him.
(5)….
(6)He must consider, so far as is reasonably ascertainable—
(a)the person's past and present wishes and feelings (and, in particular, any relevant written statement made by him when he had capacity),
(b)the beliefs and values that would be likely to influence his decision if he had capacity, and
(c)the other factors that he would be likely to consider if he were able to do so.
(7)He must take into account, if it is practicable and appropriate to consult them, the views of—
(a)….
(b) anyone engaged in caring for the person or interested in his welfare,
(c)….
(d)…..
as to what would be in the person's best interests and, in particular, as to the matters mentioned in subsection (6).
(8)The duties imposed by subsections (1) to (7) also apply in relation to the exercise of any powers which—
(a)……
(b)are exercisable by a person under this Act where he reasonably believes that another person lacks capacity.
(9)….
(10)….
(11)"Relevant circumstances" are those—
(a)of which the person making the determination is aware, and
(b)which it would be reasonable to regard as relevant.
Right to respect for private and family life
1. Everyone has the right to respect for his private and family life …..
2. There shall be no interference by a public authority with the exercise of this right except such as is in accordance with the law and is necessary in a democratic society in the interests of national security, public safety or the economic well-being of the country, for the prevention of disorder or crime, for the protection of health or morals, or for the protection of the rights and freedoms of others.
"The Court does not agree with the applicant that a mere biological kinship without any further legal or factual elements indicating the existence of a close personal relationship, should be regarded as sufficient to attract the protection of Art 8"
i) Dickinson v UK 46 EHRR 41, a case concerning the refusal to grant artificial insemination facilities. It was held that Article 8 was engaged because the decision concerned the applicant's private and family life which notions incorporate the right to respect for their decision to become genetic parents. The choice whether to become a genetic parent was described as a particularly important facet of an individual's existence or identity [78]
ii) Evans v UK 10 April 2007, 46 EHRR 34:
The Grand Chamber agrees with the Chamber that "private life", which is a broad term encompassing, inter alia, aspects of an individual's physical and social identity including the right to personal autonomy, personal development and to establish and develop relationships with other human being and the outside world ……incorporates the right to respect for both the decisions to become and not become a parent.
i) If DE undergoes a vasectomy the likelihood is that DE loses or has significantly reduced his ability to make the choice to become a genetic parent in the future;
On the other hand
ii) Under Art 8 DE has a right to respect for his autonomy which includes his decision not to have any more children and his wish to develop a sexual relationship with PQ which should be as anxiety free as possible.
1. State Parties shall take effective and appropriate measures to eliminate discrimination against persons with disabilities in all matters relating to marriage, family, parenthood and relationships, on an equal basis with others, so as to ensure that:
(a)The right of all persons with disabilities who are of marriageable age to marry and to found a family on the basis of free and full consent of the intending spouses is recognized;
(b)The rights of persons with disabilities to decide freely and responsibly on the number and spacing of their children and to have access to age-appropriate information, reproductive and family planning education are recognized, and the means necessary to enable them to exercise these rights are provided;
(c)Persons with disabilities, including children, retain their fertility on an equal basis with others.
"1. ….take effective and appropriate measures, including through peer support, to enable persons with disabilities to attain and maintain maximum independence, full physical, mental, social and vocational ability, and full inclusion and participation in all aspects of life."
"There is in my judgment an artificiality in debates as to whether some proposition is a presumption, a starting point or a cross check"
"Mr Armstrong has in effect wrongly conflated the approach that is called for when Article 8 is engaged in this context with the approach that is to be applied when making an overall determination under the 2005 Act. The general approach under the 2005 Act is laid down in section 4, with the principles set out in section 1 also applying. To add a further legal starting point to the act is not called for."
i) The decision must be made in DE's best interests not, in the interests of others although the interests of others may indirectly be a factor insofar as they relate to DE's best interests. Re Y (mental incapacity:bone marrow transplant [2007] 2 FCR 172 and Re A (Male Sterilisation) [2000] 1 FLR 549.
ii) The court is not tied to any clinical assessment of what is in DE's best interests and should reach its own conclusion on the evidence before it Trust A and Trust B v H (An Adult Patient) [2006] EWHC 1230.
iii) Best Interests is an objective test Burke v GMC [2005] EWCA Civ 1003.
iv) The weight to be attached to the various factors will, inevitably, differ depending upon the individual circumstances of the particular case. A feature or factor which in one case may carry great, possibly even preponderant, weight may in another, superficially similar case, carry much less, or even very little, weight. Re M.ITW and Z and Others.
v) There is no hierarchy in the list of factors in s4 and the weight to be attached to the various factors will depend upon the individual circumstances: Re M.ITW and Z and Others [2009] EWHC 2525 (Fam) [32].
vi) There may, in the particular case, be one or more features or factors which, as Thorpe LJ has frequently put it, are of "magnetic importance" in influencing or even determining the outcome Re M.ITW and Z and Others [2009] EWHC 2525 (Fam).
vii) Any benefit of treatment has to be balanced and considered in the light of any additional suffering or detriment the treatment option would entail Re A (Male Sterilisation) [2000] 1 FLR 549 at 560.
viii) The declaration should not be sought if vasectomy would be disproportionate and not the least restrictive step, risk management is better than invasive treatment A Local Authority v K & Otrs [2013] EWHC 242 [33].
ix) The decision is for the Judge not the expert. Their roles are distinct and it is for the Judge to make the final decision A Local Authority v K.D and L [2005] 1 FLR 851 [39] &[44].
i) Best interests encompasses medical emotional and all other welfare issues [555E]
ii) The sterilisation of a man is not the equivalent of an application in respect of a woman. .. sexual intercourse for a woman carries the risk of pregnancy… there is no direct consequence for a man of sexual intercourse other than the possibility of sexually transmitted diseases.[557D]
iii) On the facts of the case the level of supervision does not depend upon his fertility and the operation would not free him to enjoy a more relaxed regime.
iv) If his quality of life were to be diminished, that would be a reason to seek at that time a hearing before a high court judge to grant a declaration that sterilisation would then be in A's best interest.
Lord Justice Thorpe in his judgment said:
v) I share his view [A's psychiatrist], that A's fertility is of no advantage to him but a real disadvantage. In our society vasectomy has become the preferred method of contraception for many males who wish to separate their sexual and procreative functions. The obligation of society is to minimise the consequences of disability by vouchsafing for the disabled wherever possible the rights and freedoms vouchsafed to the majority who have been spared disability
vi) In my judgment the crucial missing piece in the construction of the evidential jigsaw was evidence from A's mother and/or A's alternative carers that …supervision post vasectomy would be at a reduced level and opportunities for A to develop sexual experience and intimacy with a woman countenanced.[559H]
vii) The judge at first instance should draw up a balance sheet of factors of actual benefit and counterbalancing dis-benefits. Only if the account was in relatively significant credit should the judge conclude that the application was likely to advance the best interest of the claimant. [560G]
viii) Although the appeal was dismissed Thorpe LJ concluded I would like to emphasis that its failure does not preclude a fresh application in future on fresh evidence.
"I venture, however, to add the following observations:
i) First, P's wishes and feelings will always be a significant factor to which the court must pay close regard: see Re MM; Local Authority X v MM (by the Official Solicitor) and KM [2007] EWHC 2003 (Fam), [2009] 1 FLR 443, at paras [121][124].
ii) Secondly, the weight to be attached to P's wishes and feelings will always be case-specific and fact-specific. In some cases, in some situations, they may carry much, even, on occasions, preponderant, weight. In other cases, in other situations, and even where the circumstances may have some superficial similarity, they may carry very little weight. One cannot, as it were, attribute any particular a priori weight or importance to P's wishes and feelings; it all depends, it must depend, upon the individual circumstances of the particular case. And even if one is dealing with a particular individual, the weight to be attached to their wishes and feelings must depend upon the particular context; in relation to one topic P's wishes and feelings may carry great weight whilst at the same time carrying much less weight in relation to another topic. Just as the test of incapacity under the 2005 Act is, as under the common law, 'issue specific', so in a similar way the weight to be attached to P's wishes and feelings will likewise be issue specific.
iii) Thirdly, in considering the weight and importance to be attached to P's wishes and feelings the court must of course, and as required by section 4(2) of the 2005 Act, have regard to all the relevant circumstances. In this context the relevant circumstances will include, though I emphasise that they are by no means limited to, such matters as:
a) the degree of P's incapacity, for the nearer to the borderline the more weight must in principle be attached to P's wishes and feelings: Re MM; Local Authority X v MM (by the Official Solicitor) and KM [2007] EWHC 2003 (Fam), [2009] 1 FLR 443, at para [124];
b) the strength and consistency of the views being expressed by P;
c) the possible impact on P of knowledge that her wishes and feelings are not being given effect to: see again Re MM; Local Authority X v MM (by the Official Solicitor) and KM [2007] EWHC 2003 (Fam), [2009] 1 FLR 443, at para [124];
d) the extent to which P's wishes and feelings are, or are not, rational, sensible, responsible and pragmatically capable of sensible implementation in the particular circumstances; and
e) crucially, the extent to which P's wishes and feelings, if given effect to, can properly be accommodated within the court's overall assessment of what is in her best interests.
The Balancing Exercise
i) DE is 37. He will not regain capacity in the future. At every stage both his parents, ZZ and CH have done all that is reasonably practical to encourage DE to participate and to improve his ability to participate as fully as possible in the decision to be made. Not only have CH and ZZ by virtue of their skill and intimate knowledge of DE been able, (despite his considerable communication difficulties), to determine his true wishes and feelings but, have worked with him week after week to such good effect that during the course of the proceedings DE has gained the capacity to consent to sexual relations. (s4(1)(a), s4(3)(a) &(b), s4(4).
ii) For the reasons set out in this judgment I am satisfied that DE has a genuine and settled desire not to have any more children: s4(6)(a).
iii) Section 4(6)(c) requires the court to take into account other factors which DE would be likely to consider if he were able to go so; the so called "substituted judgment" test although it is but one factor with 'best interests' the final test. In this context the court must take into account the Mental Capacity Act Code of Practice para 5.48 which allow actions that benefit other people, as long as they are in the best interests of the person who lacks capacity. DE is very close to his parents; he loves and relies upon them. If they are upset he is upset. The court can take into account the benefits to FG and JK of DE having a vasectomy if it is a factor DE would consider if he had capacity. It is likely that DE would consider the benefit to his parents of relieving them of the anxiety and strain that they have been suffering and of which he has been very conscious.
Such a benefit to the parents would be of significant benefit to DE, not only because he would benefit from them being happier and less anxious, but also because relieved of the anxiety of a second pregnancy, I am satisfied that JK would feel able significantly to relax the level of supervision she felt to be necessary and that, despite her general misgivings about PQ, would once again promote and support the relationship as she did prior to the pregnancy.
iv) DE's parents believe it is in DE's best interests to have a vasectomy. Their absolute conviction that this is the right thing for their son has given them the stamina and courage to endure the tortuous litigation which they could never have foreseen when they went along to see the GP three years ago in July 2010: s4(7)(b).
Conclusion
i) DE's private life
a) DE's relationship with PQ is enduring and loving. It is very important to DE and he was deeply distressed when there was a break at the beginning of the year. The relationship should be respected and supported in the way all other aspects of DE's life are respected and supported.
b) The relationship has been sexual in the past and DE (and PQ) would like to, and should be permitted, to resume their sexual relationship.
c) DE is unequivocal and consistent in expressing his wish not to have any more children.
d) The only way that this can be ensured is by DE having a vasectomy. There is a high (over 18%) chance of pregnancy using condoms; DE's technique is poor and he cannot be relied upon consistently to use them.
e) If another child was born not only would DE be deeply distressed but a removal of the child from PQ would be very likely to result in the breakdown of the relationship.
ii) DE's relationship with his parents
a) DE's only other consistently held and expressed view is that he wants to live at home with his parents. He is wholly dependant upon them for his physical and emotional welfare.
b) DE's parents were deeply distressed by PQ's pregnancy and the birth of XY. Although they are, JK says, getting through it, they have obviously been traumatised by all that has gone on since PQ's pregnancy was discovered in 2010. Those events remain raw and JK exhibited an almost tangible fear of the consequences of a second pregnancy. They know their anxiety has an impact upon DE, I am sure they do their best to protect DE from it but they are only human and inevitably DE is acutely aware of their distress; this has had a significant impact upon his own emotional comfort and well being. I have no doubt that a second pregnancy would have an even greater impact upon the family particularly as FG and JK would inevitably regard such a pregnancy as having been avoidable.
c) DE's parents support and protect DE, they organise every practical aspect of his life. It is not unreasonable to expect that if they do not have reassurance that DE has the benefit of effective contraception then the level of independence they will believe it is in his best interests for him to be afforded will be compromised.
iii) DE's Independence
a) PQ's pregnancy followed by the interim declaration that DE did not have the capacity to consent to sexual relations has had very serious consequences for DE, resulting in his losing, for a period, all autonomy and his being supervised at all times. Whilst there has been some easing of supervision, his life is still very different from his life before XY was born and he is still never alone with PQ.
b) The loss to DE has been compounded by the fact that due to his learning difficulties DE cannot 'pick up where he left off'; skills which took years to acquire have, when not used, been lost, as has much of his confidence. The fact that DE has acquiesced as restrictions have been imposed upon him does not make the loss to him any less profound; it is both the entitlement and in the best interests of any person with significant disabilities, (whether learning or physical), that they be given such support as will enable them to be as much an integral part of society as can reasonably be achieved. It is simply stating the obvious to observe that DE's quality of life is incomparably better when he can go and have a coffee in town with PQ or go to the local gym with his friend. As Mr McKendrick said as a person with learning disabilities, his successes and failures in life are measured differently to the non learning disabled population.
i) The surgical procedure
a) The slender risk of DE suffering from long term scrotal pain and or discomfort, a risk further reduced by the fact that it is intended that the procedure would be carried out by a consultant urologist with a consultant anaesthetist. DE has tolerated local anaesthesia in the past and there is no reason to believe that he will not do so again. One or other of his parents will be with him throughout.
b) The procedure is non therapeutic.
c) The procedure does not protect against the transmission of STIs or STDs.